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St. Luke's Children's Muscular Dystrophy Clinic

The multidisciplinary team at St. Luke's Children's Muscular Dystrophy Clinic specializes in the diagnosis and medical management of neuromuscular diseases. Through our clinic, patients and families can expect to receive medical interventions that address disease symptoms and progression with a focus on enhancing quality of life and independence. Patients are typically scheduled in the clinic once a year, with children seen by several different healthcare specialists – all at one location, in one visit. 

Clinic specialists include a physiatrist, neurologist, cardiologist, dietitian, genetic counselor, and physical therapist, as well as a patient care coordinator. Depending on each child's individual needs, we can also help arrange consultations outside of our clinic with additional specialists, including orthopedics, genetics, occupational therapy, neuropsychology, pulmonary medicine, and respiratory therapy providers.

Common diagnoses seen in our clinic include:

  • Duchenne muscular dystrophy (DMD)
  • Becker muscular dystrophy
  • Charcot-Marie-Tooth disease (CMT)
  • Congenital muscular dystrophy (CMD)
  • Mitochondrial myopathy
  • Myotonic muscular dystrophy
  • Merosin-deficient congenital muscular dystrophy
  • Spinal muscular atrophy

We see patients on the fourth Monday of each month, from 8 a.m.-1 p.m.

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If you have a medical emergency, do not use online scheduling. Call 911 or proceed to your nearest emergency department. If you require immediate assistance for a non-emergency condition, please contact the clinic directly by phone.

Specialties

Providers

  • Robert F. Adams, MD

    Pediatric Cardiology

    Biography

    Robert Adams, MD specializes in caring for children with a wide range of congenital and acquired heart diseases. His particular interest lies in echocardiography, including fetal, transthoracic, and transesophageal.

    Availability

    Accepting new patients
    • St. Luke's Health Partner
      St. Luke's Health Partner

      These providers work together to achieve patient-centered care, using proven best practices to offer better care to you and your family.

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  • Melissa M. Agoudemos, MD

    Pediatric Cardiology

    Biography

    Melissa Agoudemos, MD, PhD has special interest in pediatric cardiovascular imaging with a focus on fetal echocardiograms. She is passionate about working closely with families to develop understanding regarding the diagnosis and management of their children's cardiovascular disorders.

    While earning her medical degree, Melissa investigated the body's abilities to grow new blood vessels (angiogenesis) and the effects of maternal disease on the cardiovascular health of children.

    Availability

    Accepting new patients
    • St. Luke's Health Partner
      St. Luke's Health Partner

      These providers work together to achieve patient-centered care, using proven best practices to offer better care to you and your family.

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  • Diana C. Alexander, MD

    Pediatric Cardiology

    Availability

    Accepting new patients
    • St. Luke's Health Partner
      St. Luke's Health Partner

      These providers work together to achieve patient-centered care, using proven best practices to offer better care to you and your family.

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  • Daniel K. Arrington, MD

    Pediatric Neurology

    Biography

    Daniel Arrington, MD completed his pediatrics residency at Phoenix Children's Hospital/Maricopa Medical Center and his child neurology residency at Barrow Neurological Institute/St. Joseph's Hospital in Phoenix. Before joining St. Luke's Children's, Dr. Arrington served as assistant professor of child neurology at the University of Oklahoma Health Sciences Center and was an attending physician at the Children's Hospital of Oklahoma.

    Availability

    Accepting new patients
    • St. Luke's Health Partner
      St. Luke's Health Partner

      These providers work together to achieve patient-centered care, using proven best practices to offer better care to you and your family.

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  • John R. Condie, MD

    John R. Condie, MD

    Pediatric Neurology

    Availability

    Accepting new patients
    • St. Luke's Health Partner
      St. Luke's Health Partner

      These providers work together to achieve patient-centered care, using proven best practices to offer better care to you and your family.

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  • Erin Conlee, MD

    Erin M. Conlee, MD

    Pediatric Rehabilitation Medicine

    Biography

    Erin M. Conlee, MD specializes in the rehabilitation and management of children with brain injuries, spinal cord injuries, neuromuscular disorders, and an array of musculoskeletal conditions. She has a particular interest in oncology-related impairments and conditions. 

    Dr. Conlee works to maximize quality of life and restore optimal functioning to patients through working with a multidisciplinary team of therapists and ancillary providers. She is passionate about caring for children and young adults, striving to meet needs across a variety of conditions and health care settings.

    Availability

    Accepting new patients
  • Katherine Curry, LCGC

    Katherine Curry, LCGC

    General Genetics

    Biography

    Katherine (KT) Curry, MS, LCGC is a genetic counselor in the pediatric/metabolic genetics department where she specializes in cardiovascular genetics. KT’s drive and passion for genetic counseling is to empower families through knowledge about themselves and their family members.

    KT completed her bachelor’s degree in psychology with a minor in business from Eastern Oregon University and her master’s degree in genetic counseling from the University of Minnesota. Her fellowship in Minnesota’s LEND Program for Neurodevelopmental Disabilities program was completed at the University of Minnesota.

    Availability

    Accepting new patients

  • Lindsey M. Foy, MD

    Pediatric Neurology

    Biography

    Lindsey Foy, MD completed both her pediatrics residency and her pediatric neurology residency and fellowship at the University of Michigan, Ann Arbor. She has experience with epilepsy and the neurological impacts of nutritional deficiencies. 

    Availability

    Accepting new patients
    • St. Luke's Health Partner
      St. Luke's Health Partner

      These providers work together to achieve patient-centered care, using proven best practices to offer better care to you and your family.

      see full profile

    • Specialties, Conditions & Treatments

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  • Rachel Hernandez, RD

    Rachel C. Hernandez, RD

    Nutritional Counseling for Adults

    Availability

    Accepting new patients

  • Gordon K. Mack, MD

    Pediatric Cardiology

    Biography

    Gordon Mack, MD cares for children with a wide range of congenital and acquired heart diseases. His particular interests lie in echocardiography, cardiac catheterization, and pediatric thrombosis. He completed his pediatric cardiology fellowship at Doernbecher Children’s Hospital and at the Hospital for Sick Children in Toronto. He trained in pediatric cardiac catheterization and pediatric clots in Edmonton.

    Availability

    Accepting new patients
    • St. Luke's Health Partner
      St. Luke's Health Partner

      These providers work together to achieve patient-centered care, using proven best practices to offer better care to you and your family.

      see full profile

    • Specialties, Conditions & Treatments

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  • Joanne M. Mangun, PT

    Physical Therapy

    Availability

    Accepting new patients

  • Shannon S. Morrill, PA-C

    Pediatric Neurology

    Biography

    Shannon Morrill, PA-C earned her bachelor’s degree in biology at the University of Idaho and her physician assistant degree at the University of Colorado.

    Availability

    Accepting new patients
    • St. Luke's Health Partner
      St. Luke's Health Partner

      These providers work together to achieve patient-centered care, using proven best practices to offer better care to you and your family.

      see full profile

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  • Benjamin M. Tippets, DO

    Pediatric Pulmonology

    Biography

    Benjamin M. Tippets, DO, MPH has special interests in cystic fibrosis and bronchopulmonary dysplasia. His research has been in the area of newborn screening.

    Prior to medical school, Dr. Tippets earned an associate's degree in science from Rick's College, a bachelor's degree in zoology from Brigham Young University, and a master's degree in public health from the University of Utah.

    Availability

    Accepting new patients
    • St. Luke's Health Partner
      St. Luke's Health Partner

      These providers work together to achieve patient-centered care, using proven best practices to offer better care to you and your family.

      see full profile

    • Specialties, Conditions & Treatments

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  • Mary Walters, NP

    Mary T. Walters, NP

    Pediatric Rehabilitation Medicine

    Biography

    Mary Walters, NP is a nurse practitioner and manager of both the spina bifida clinic and the muscular dystrophy clinic. She is a member of the care team with a focus on coordinating care between providers. Mary follows patients through every step of their experience, providing a single point of contact for every stage of care.

    Mary grew up and attended school in Montana, eventually earning her bachelor's degree in nursing from Montana State University. She worked for St. Luke's Children's Hospital prior to earning her master's degree and pediatric nurse practitioner's degree from the University of South Alabama.

    Availability

    Accepting new patients

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