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St. Luke's Children's Muscular Dystrophy Clinic

The multidisciplinary team at St. Luke's Children's Muscular Dystrophy Clinic specializes in the diagnosis and medical management of neuromuscular diseases. Through our clinic, patients and families can expect to receive medical interventions that address disease symptoms and progression with a focus on enhancing quality of life and independence. Patients are typically scheduled in the clinic once a year, with children seen by several different healthcare specialists – all at one location, in one visit. 

Clinic specialists include a physiatrist, neurologist, cardiologist, dietitian, genetic counselor, and physical therapist, as well as a patient care coordinator. Depending on each child's individual needs, we can also help arrange consultations outside of our clinic with additional specialists, including orthopedics, genetics, occupational therapy, neuropsychology, pulmonary medicine, and respiratory therapy providers.

Common diagnoses seen in our clinic include:

  • Duchenne muscular dystrophy (DMD)
  • Becker muscular dystrophy
  • Charcot-Marie-Tooth disease (CMT)
  • Congenital muscular dystrophy (CMD)
  • Mitochondrial myopathy
  • Myotonic muscular dystrophy
  • Merosin-deficient congenital muscular dystrophy
  • Spinal muscular atrophy

We see patients on the fourth Monday of each month, from 8 a.m.-1 p.m.

Providers

  • Pediatric Cardiology

    Biography

    Robert Adams, MD specializes in caring for children with a wide range of congenital and acquired heart diseases. His particular interest lies in echocardiography, including fetal, transthoracic, and transesophageal.

    Availability

    Accepting new patients
  • Pediatric Cardiology

    Availability

    Accepting new patients
  • Pediatric Neurology

    Biography

    Daniel Arrington, MD completed his pediatrics residency at Phoenix Children's Hospital/Maricopa Medical Center and his child neurology residency at Barrow Neurological Institute/St. Joseph's Hospital in Phoenix. Before joining St. Luke's Children's, Dr. Arrington served as assistant professor of child neurology at the University of Oklahoma Health Sciences Center and was an attending physician at the Children's Hospital of Oklahoma.

    Availability

    Accepting new patients
  • Pediatric Cardiology

    Biography

    Gordon Mack, MD cares for children with a wide range of congenital and acquired heart diseases. His particular interests lie in echocardiography, cardiac catheterization, and pediatric thrombosis. He completed his pediatric cardiology fellowship at Doernbecher Children’s Hospital and at the Hospital for Sick Children in Toronto. He trained in pediatric cardiac catheterization and pediatric clots in Edmonton.

    Availability

    Accepting new patients
  • Pediatric Rehabilitation Medicine

    Biography

    Jacob Neufeld, MD earned his master’s degree in public health from the University of North Carolina. He completed his internship at Detroit Medical Center/Grace Hospital/Wayne State University. He served his residency in pediatrics and physical medicine and rehabilitation at Detroit Medical Center/Children’s Hospital of Michigan and the Rehabilitation Institute of Michigan at Wayne State University.

    Availability

    Accepting new patients
  • Pediatric Orthopedics

    Biography

    Jason Robison, MD, POSNA has special interest in pediatric orthopedic care, trauma, foot and ankle surgery, sports medicine, and complex deformity correction. He also specializes in non-surgical and surgical treatment of complex deformities of the spine and hip in children and young adults. Dr. Robison is member of the Pediatric Orthopaedic Association of North America (POSNA). His research interests have focused on hip deformity in young, active adults and the outcomes of non-joint replacement surgeries. He has authored textbook chapters on orthopedic trauma and the management of complex pediatric spinal deformity.

    Availability

    Accepting new patients
  • Pediatric Pulmonology

    Biography

    Benjamin M. Tippets, DO, MPH has special interests in cystic fibrosis and bronchopulmonary dysplasia and serves on the medical staff of St. Luke's Children's Cystic Fibrosis. He received a master's degree in public health from the University of Utah.

    Availability

    Accepting new patients

Building on Our Promise to Children

St. Luke

Children's Pavilion - Opening in 2019

Designed to meet the needs of kids, their families, and the people who care for them, this state-of-the-art facility on our downtown Boise campus will more than double our clinical space and improve vital services that keep care close to home. It will bring most of our pediatric specialists and services under one roof, allowing us to provide care more efficiently and easing the burden on parents and kids who will now be able to see several providers in one location in one day.
 

Kid for a Night

Help raise funds for St. Luke's Children's

Kid for a Night® emphasizes the fun in fundraising. This annual event encourages adults (21 and over) to act like kids again. Over 850 guests gather for an evening of games, activities, music, dancing, a silent auction, and a delicious dinner.