At St. Luke’s Children’s, our Parent Mentor Program connects families with experienced parents who’ve walked a similar path. These mentors understand the challenges of caring for a child with medical needs and are trained to offer meaningful support, encouragement, and practical advice.
Mentors may talk with families about:
Parent mentors may offer support in person, by telephone, or through email. If you’re interested in talking with a parent mentor, call (208) 706-6487 or send us an email.
I am the mother of three children, two of whom were diagnosed with Usher Syndrome Type IIc. This recessively inherited syndrome causes hearing loss at birth and is followed by retinitis pigmentosa (vision loss) that starts to occur during the teenage years. There are several different types of Usher Syndrome, some of which also impact the vestibular system.
Kylie and Ryder were both born with bilateral moderate-severe sensorineural hearing loss at birth. They have both worn hearing aids since they were about six weeks old. Their vision has not yet been impacted. They are wonderful kids who excel at school and sports. Nothing stops them! They participate in Basque dancing, swim team, skiing, baseball, basketball, soccer, and gymnastics. Kylie loves music and dancing and Ryder is an avid fan of Fortnite. We love to get outdoors and camp, backpack, bike, and garden as a family. I love talking to families of children recently diagnosed with hearing loss and/or those diagnosed with Usher Syndrome. I have a lot of connections within those communities and am happy to help. I have been a registered nurse at St. Luke's for 20 years and have worked in pediatrics, NICU, and birth and parenting.
