My Medical Record
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Venue & Location
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For information, please call number listed below under Registration.
Description
Courageous Hearts of Idaho is the only pediatric heart disease support group in Idaho. We’re open to parents of children with heart disease, adults with congenital heart disease, extended families, caregivers, nurses—anyone who loves someone with a courageous heart.Our group was founded in 2008 by parents who recognized the need in our community for face-to-face support and the sharing of resources and information. Support and resources are provided free of charge to all patients and families. We assist with:
- Parent matching
- Participation in the American Heart Association Treasure Valley Heart Walk
- Educational opportunities
- Lending library
- Confidential communication
A Message from Jacob’s Mom
Did you know that nine out of every 1,000 babies born have some form of congenital heart defect or heart disease?My son Jacob is one of them. He was born with a condition called dilated cardiomyopathy, which caused him to be in congestive heart failure. It caused his heart to become weakened and enlarged, and now it cannot pump blood efficiently.
Jacob is now on more than 10 medications a day, and even though he tries his hardest to be a typical three-year-old boy, he isn’t thriving. He tires easily and just can't keep up with the other kids. Even with all the wonderful scientific advancements that have helped him live this long, he still is reliant on a feeding tube and still is in heart failure.
I hope that someday we will find a cure for heart disease, so that Jacob and all the kids like him can grow up and lead happy and healthy lives.Sincerely, Jinjue Serre
Registration
We are in the process of merging with Mended Little Hearts, a national non-profit, volunteer-based organization that supports children with congenital heart defects and their families. While we are in transition please call Julie Du Bois, Pediatric Cardiovascular Services Coordinator at St. Luke's Children's Hospital for more information. Julie can be reached at (208) 381-1978, or by email at duboisj@slhs.org.