St. Luke's Hemophilia Center

The St. Luke's Hemophilia Center, housed in the Pediatric Hematology and Oncology Clinic at St. Luke's Mountain States Tumor Institute (MSTI), cares for patients with bleeding disorders, as well as those with blood clotting problems. We are the only center in Idaho that offers comprehensive care to people with hemophilia and other bleeding disorders.

Appointments or Questions

Call Us
(208) 381-2782 or
toll-free 1-800-845-4624

Mon - Fri, 9 a.m.-5 p.m.

24/7 On-Call Coverage

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What is Hemophilia?

  • Hemophilia is a rare genetic bleeding disorder caused by a shortage of certain clotting factors. Blood-clotting factors are need to help stop bleeding after a cut or injury and to prevent spontaneous bleeding. The hemophilia gene can contain many different errors, leading to different degrees of abnormality in the amount of clotting factor produced.

    There are two major types of hemophilia:

    • Hemophilia A is caused by a deficiency of active clotting factor VIII. Approximately 80 percent of all people with hemophilia have type A, and most of these cases are severe. Approximately one out of every 5,000 male babies is born with hemophilia A.
    • Hemophilia B is caused by a lack of active clotting factor IX. It is less common, occurring in one out of every 30,000 male babies.

Signs and Symptoms of Hemophilia
Symptoms of hemophilia are usually first noticed during infancy or childhood. However, some people with milder forms of hemophilia may not develop symptoms until later in life.

The following signs may be noticed shortly after birth:

    • Bleeding into the muscle, resulting in a deep bruise after receiving a routine vitamin K shot
    • Prolonged bleeding after circumcision


Other symptoms of hemophilia include:

    • Bleeding into a joint or muscle, causing pain and swelling
    • Abnormal bleeding after an injury or surgery
    • Easy bruising
    • Frequent nosebleeds
    • Blood in the urine
    • Bleeding after dental work


Severity and frequency of bleeding episodes vary from patient to patient and may differ depending on whether the person has hemophilia A or hemophilia B.

Von Willebrand's Disease

Von Willebrand's disease is a bleeding disorder. When you have this disease, it takes longer for your blood to form clots, so you bleed for a longer time than other people.

Normally, when a person begins to bleed, small blood cells called platelets go to the site of the bleeding and clump together to help stop the bleeding. If you have von Willebrand's disease, your blood doesn't clot well because you don't have a certain protein in your blood or you have low levels of it. This protein is called von Willebrand. It helps a blood clot to remain in place to stop bleeding.

The disease is mild in most people. It can stay the same or get better or worse as you get older.

What are the types of von Willebrand's disease?

There are three major types of the disease. They range from mild to severe.

  • In type 1, you are missing some von Willebrand factor. This can cause mild to moderate bleeding episodes. About 3 out of 4 people who have von Willebrand's disease have type 1. You may not know you have the disease, and you may not need treatment.
  • In type 2, you have the von Willebrand factor, but it doesn't work as it should. This usually causes mild bleeding episodes, but it can cause moderate bleeding episodes.
  • In type 3, you don't have the von Willebrand factor or you have a very small amount. This type can lead to serious bleeding episodes, but it is very rare. People who have type 3 disease can develop anemia and can have dangerous bleeding after an injury or during surgery.

 

Our Team

Medical Oncology/Hematology


Hemophilia Program Coordinator and Nurse Practitioner

  • Kara Garner, NP - Boise

 

Patient Services

  • Laboratory Services
  • Genetic Counseling
  • Nutritional Counseling
  • Financial Advocacy
  • Education/Career Counselor
  • Orthotist
  • Social Work
  • Physical Therapy
  • Infectious Disease Specialist
  • Risk Reduction
  • Research
  • Community Outreach Program

What's Next?

The St. Luke's Hemophilia Center operates on the first Wednesday of every month at our facility in Boise. If you reside outside of the Boise area, we offer transportation assistance and overnight accommodations to help facilitate your treatment.

For more information, please call us at (208) 381-2782 or 1-800-845-4624.

Boise Boise
100 E. Idaho Street
Boise, Idaho 83712
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